42 days, 7 doctors and specialists, 8 doctor appointments, 1 MRI, 4 x-rays, 2 ultrasounds, 1 urinalysis, 1 ER visit, 2 discussions of a hospital admission, 3-4 misdiagnoses, 3 medicine changes, 30+ days of severe pain, 25 nights of no sleep, 3 tear-filled medical phone calls, 2 desperate emails, $5,000-$10,000, 3 trips to Primary's, 5 trips to Riverton, 2 trips to IMC, dozens of days of intense suffering, and countless hours of mommy research and we FINALLY have an answer.
And the reason for my rage?? The cause is the first that I suspected, and the first thing we supposedly ruled out. But due to ER doctor error, it was missed 24 hours after pain started. Due to 5 other doctors' lack of thoroughness it was missed for another 39 days. Due to 1 doctor in Comprehensive Care caring enough to thoroughly review EVERY set of doctors' notes and EVERY test result, and acknowledge the fact that errors are made, we learned that a KIDNEY STONE was to blame.
In Jayson's initial urinalysis on 12-18-14 (just 24 hrs after pain started), sediments were found and his red blood cell count was on the high end of normal. Given the history that Jayson had a stone in his left kidney, that should have been enough to warrant an ultrasound or CT scan. But it was missed. The ER doctor said everything on his labs were perfect. Given that was just 24 hours after initial pain had started, there was not a lot of blood found in his urine so the red blood cell count was at the highest level of normal. His urine was never checked since, because the urinalysis was labeled as "normal". Once the actual lab is opened on the computer, the section labeled "Amorphous Phosphate Crystals" is flagged as abnormal and had a high level of sediments. None of Jayson's doctors checked it until our Comprehensive Care doc reviewed it on Monday. The ultrasounds today reviewed that it was no longer in his kidney. The tech and radiologist measured the last image of the stone from 2012 and told me it was 3.7mm which is large for someone Jayson's size. Stones larger that 4mm often need medical and even surgical intervention. It would definitely cause some serious pain coming out, and would likely take a long time to pass. The likelihood of it getting stuck temporarily or permanently is also higher. The urologist reviewed the ultrasounds, his symptoms and the medical observations of all those involved. Jayson has a healthy bladder, healthy kidneys, no more stones. He does not at this time have neurogenic bladder. He believes Jayson passed his kidney stone and it caused the pain and urine retention. My son spent over a month passing a damn kidney stone that nobody knew about. Without meds. Without intervention. On his own, quietly dealing with one of the most severe pains there is.
It seems the stone has passed and Jayse is just a little sore, but on the road to recovery. There are no more stones in his kidneys at this time, and I hope to soon be over this anger I feel. One day this will be a distant memory. One that reminds me to follow my mommy gut, despite the resistance I will inevitably encounter. And one that reminds me of a fact I already know---> my son is a bad A. That is all.
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